Existing measures and endpoints may not capture the value and improvements offered by novel interventions, especially in rare disease. Rob Arbuckle explores data collection and the need for collaboration to define what is meaningful change and how it is shown.
Watch the hideo here
About Rob and Adelphi Values | Patient-Centered Outcomes:
I lead projects focussed on the development, validation and implementation of patient-reported outcomes (PRO), Clinician-Reported Outcome (ClinRO) and Observer-Reported Outcome (ObsRO) instruments for clients in the pharmaceutical industry
Adelphi Values | Patient-Centered Outcomes – https://www.adelphivalues.com/practices/patient-centered-outcomes/
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